Well yesterday was an appointment I was waiting for and I was quite surprised at how it turned out. In the beginning of June Dakota went to my Uncle’s Farm. My dad told me that he noticed Dakota’s left shoulder jerking a whole lot. I said something to my husband who said I have noticed this for the past 6 – 7 months. I was like why didn’t you tell me. He claims he thought he did. Maybe he did and I thought nothing of it. After my dad told me I really noticed it. I not only noticed it the Autism therapist noticed it then too.
I called the neurologist and they had us take him off the tremor medicine. I was a little disappointed as the tremors were starting to get better. We were to watch for sniffing and blinking which I don’t think I am seeing anything out of the ordinary. I have noticed the ticks get worse. I was told ticks can just come on at any time. They don’t hurt him. I was a little relieved. I have to call the neurologist back next week.
Well we went to the psychiatrist and I told him about the ticks. He seemed very concerned. I mentioned the neurologist said he thought maybe it could be the seroquel or clonodine that Dakota was taking. His face crinkle and he said WHAT? and kind of hissed. Shook his head and said no I think it’s the Dexadrine. His reaction was kinda of funny. He reminds me of Mr Me-ogi (spelling) from the Karate Kid. He said we could take him off the dexidrine to see if that is the culprit. My husband was all for it because he is not crazy about pills. I personally don’t think he is ready to learn to focus just yet. I want that day to come but right now I don’t think it is time. He is wound tight in the mornings and he needs to focus on school work.
So I asked him he remembered me asking him about a non narcotic drug. He said intuiv or something like that. He sat and thought. He said we have to do something quick and make sure it works. He also suggested putting Dakota on a night time medicine that was way more gentler then seroquel. Seroquel makes him really dopey and he eats non stop until he falls asleep. He didn’t like that either. He said lets do one thing at a time. So we are taking away dexadrine and clonodine. In it’s place will be intuniv. Said it might make him sleepy and if it does then I should give it to him at night and cut the seroquel in half then.
In the meantime he has ordered blood work. Wants to make sure the seroquel isn’t causing any trouble and that there is nothing else wrong that we may have missed. I was ok with this as really you can never me to sure.
We talked about the ticks some. He said they can come out more while playing video games, stressed, or being excited. He also mentioned that out of 100 kids 30 kids will develop ticks. These are children with autism. I never knew that so I learned something new. I know that autistic kids can have trouble sleeping and that Dakota has.
We go back to see him next week. I will be calling the neurologist to update them too.
Overall I was very pleased with his reaction. I honestly didn’t think that was the reaction I would get. He really cares about his patients and he is willing to go that extra mile. He also takes the time to explain things and I was happy about that.
Hope you all have a great Saturday