Well I haven’t been able to do much this week because of the med changes. This time around it was pure hell, not only for me but for Dakota. We started the Intuniv on Tuesday. We took away the clonodine and the dexadrine. Well let’s just say that Tuesday was absolutely horrible. Dakota was so hyper. He couldn’t think before he spoke or acted. He couldn’t calm himself down. His emotions were all over the place. It was terrible. I didn’t like what I saw so I immediately called they psychiatrist.

Wednesday I took Dakota to get his blood work. I gave him his meds before we left. I wish I would have waited. The psychiatrist’s office called me and said to stop the meds and resume the old ones. Well needless to say we couldn’t stop them yesterday as he already got them. My neighbor played with Brittany most of the day and Dakota was watching TV most of the day trying to stay away from everyone because he couldn’t calm himself. He said “Mommy I don’t like this med take me off”. Amazing that he could tell me that. I asked him why and he didn’t like that he couldn’t calm down. I did not see the ticks as much. Dakota did mention they were still there.

Today we are back on the old meds. He seems kind of worn out from the last two days. It’s nice not to see him all over the place. He is back to normal. I talked with the neurologist and they may put him back on his tremor meds depending on what happens tomorrow. The reason they stopped them was that it is possible that the ticks could have been enhanced by other meds but what I noticed was it made them better. Taking him off that made them slightly worse.

My husband and I talked and if we are going to work on one med at a time, we would like to start with the seroquel. We don’t want him on that any more. Which we would like him on a milder sleeping agent. Can’t do melatonin as his body got used to it and it didn’t work for him anymore. I will also find out the blood test results tomorrow too.

This week has been one hell of a ride. I hope the next adjustment goes a little smoother. I hope to catch up on blog posting and reading blogs this weekend I have greatly missed reading blog.

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