Been awhile…
May 23rd, 2010 | 
Author: It certainly has been awhile since I have posted last. I was already to catch up and start getting back into the swing of things and wham I was hit with something else. It’s nothing really I haven’t told you all about before it’s just gotten a little more serious.
Dakota has been enjoying going to gym and not last week but the week before we had an IEP meeting that I thought went very well we were ready to add another 15 minutes to Dakota’s day and were going to start on Monday. I had already started preparing Dakota for this last week.
Monday came around and Dakota started having chest pains. I was very concerned so I called the Psychiatrists office and the Doctors office and Dakota was to go in to have an EKG done. The QT levels they have been watching have not changed so they suggested that we cut our clonodine dose in half and repeat the EKG on Friday.
Tuesday Dakota woke up and still had chest pains so I called the Psychiatrist and let them know and I made an appointment for Dakota to see the Doctors. They referred him to a cardiologist to get a cardio work up to rule out anything serious. Although of course they would like to chalk it up to stress which I don’t feel that he is stressed out as the school and I have been accomodating him. So no gym until we see the cardiologist.
Wednesday we went out for a walk and Dakota took his bike and got chest pains so he walked his bike for a little while. He wasn’t riding his bike fast so I didn’t think it was serious.
Thursday Dakota still has chest pains.
Friday we had the EKG and it was a little higher. Our original psychiatrist was not there so I had to deal with an on call Doctor. He said to take him off two meds. I was rather upset about it and they said to contact my family Doctor. So once I calmed down I called back and said can’t we compromise here. You take him off two of the meds and if they are the problem to the EKG then we won’t know which one. He said no he is sticking to his decision. I said I am sorry I don’t feel that our Doctor would do this. So I got in touch with our primary Doctors who said to stop the one med and see what the other Doctor says on Monday.
I stopped the Clonodine and Dakota was up at 4AM on Saturday morning. Not a good thing to have happen as sleep derprivation can causes seizures. Thankfully no seizures.
Dakota has had chest pain for the last 7 days now. I am patiently waiting for the Doctor to call back tomorrow so I can let them know there has been no change. I am also hoping he orders another EKG so we can see if that made a difference at all.
Wednesday we see the cardiologist so I should know more of what is going on then. I almost took him to the ER today as he shed a couple tears then was ok after that. I don’t believe an 8 year old should have chest pains this long.
So that’s what’s been going on here.
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4 Responses to “Been awhile…”
I just cannot believe what you are having to go through with Dakota. If he is having chest pains this long it seems to me that they would keep him in the hospital or something until they figured this all out. That way if they take him off the meds they can monitor him and be right there should anything happen to him. In my pea brain this just doesn’t seem right how they are handling this and what they are telling you. I feel for you my friend. I wish there was something i could do to help but all I can think of is to send you all the aloha and sunshine I can and just keep telling you to be positive and don’t get run down with all of this so you can think clearly and make the right decisions.
admin Reply:
May 24th, 2010 at 7:51 am
Well I am ok with taking him off the Clonodine but the other med at the same time I wasn’t. I have had him at our primary Doctors to check him over. I have 2 more days until we see the cardiologist. I am patiently waiting for my phone call this morning from the psychiatrist office. I am hoping they do an EKG and I am hoping that with taking him off the med it has lowered his QT levels. That would be a big relief. It’s only borderline at the moment so I am not overly concerned however if it gets worse it could be serious and so far with all the EKGs he has it hasn’t gotten over borderline that I know of so that has been good news. I am really concerned though with the chest pains. Send the sunshine as it’s here!! I am so enjoying it too
I will update once I here from our psychiatrist today 
Fingers crossed!!
I hope you get some answers soon! I will keep him and you in my prayers!
admin Reply:
May 24th, 2010 at 5:44 pm
Thanks Brenda! We actually were able to get into see the cardiologist tomorrow instead of Wednesday. Although I didn’t like what the nurse had to say but I will know more tomorrow. Nobody ordered the EKG at all today.